Research Publications
Newsletters
Research Papers
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SPARCLE - A Study of Participation of Children with cerebral palsy Living in Europe
Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European study. (PDF file, 130 KB) Dickinson HO, Parkinson KN, Ravens-Sieberer U, Schirripa G, Thyen U, Arnaud C, Beckung E, Fauconnier J, McManus V, Michelsen SI, Parkes J, Colver AF. Lancet 2007; 369: 2171-2178
SPARCLE 1 South West Ireland Local Report
SPARCLE 1 South West Ireland Local Report (Full Report - PDF 1.62MB)
SPARCLE 1 South West Ireland Local Report (Executive Summary - PDF 156KB)
SPARCLE 1 South West Ireland Local Report (Lay Summary PDF 153KB)
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Other Research Papers
Parent-Reported Quality of Life of Children with Cerebral Palsy in Europe. (PDF file, 291 KB)
Arnaud C, White-Koning M, Michelsen SI, Parkes J, Parkinson K, Thyen U, Beckung E, Dickinson HO, Fauconnier J, Marcelli M, McManus V, Colver AF. Pediatrics 2008; 121: 54-64
Determinants of Child-Parent Agreement in Quality-of-Life Reports: A European Study of Children with Cerebral Palsy. (PDF file, 314 KB) White-Koning M, Arnaud C, Dickinson HO, Beckung E, Fauconnier J, McManus V, Michelsen SI, Parkes J, Parkinson K, Schirripa G, Colver AF – Pediatrcs 2007; e804-e814
Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy. (PDF file, 490 KB) Heather Dickinson, Kathryn Parkinson, Vicki McManus, Catherine Arnaud, Eva Beckung, Jerome Fauconnier, Susan I Michelsen, Jackie Parkes, Giorgio Schirripa, Ute Thyen and Allan Colver - BMC Public Health 2006, 6:273.
Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment. (PDF file, 97 KB) McManus V, Michelsen SI, Parkinson K, Beckung E, Pez O, Caravale B. Child: Care, Health & Development 2006; 32 (2): 185-192 Study protocol: SPARCLE - a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy.Kathryn Parkinson, Jackie Parkes, Vicki McManus, Catherine Arnaud, Eva Beckung, Jerome Fauconnier, Susan I Michelsen, Giorgio Schirripa, Ute Thyen, Heather Dickinson and Allan F Colver - BMC Public Health 2006, 6:105.
Case gender and severity of cerebral palsy varies with intrauterine growth. (PDF file, 101 KB) Jarvis S, Gliniania SV, Arnaud C, Fauconnier J, Johnson A, McManus V, Topp M, Uvebrant P, Cans C and Kraegeloh-Mann I. Arch Dis Child 2005;90:474-479.
Cerebral Palsy Registeries (PDF file, 57 KB) Christine Cans, Geraldine Surman, Vicki McManus, David Coghlan, Owen Hensey, and Ann Johnson Seminars in Pediatric Neurology, Vol 11, No 1 (March) 2004: pp18-23.
Link Family Support – An Evaluation of an in-home support service. (PDF file, 82 KB) H. Forde, H. Lane, D. Mc Closkey, V. McManus, & E. Tierney. Journal of Psychiatric and Mental Health Nursing, 2004, 11, 698-704.
Cerebral Palsy of post-neonatal origin: characteristics and risk factors. (PDF file, 95 KB) Cans C, Mc Manus V, Platt MJ, Johnson A. Paediatric and Perinatal Epidemiology 2004, 18, 214-220.
Surveillance of cerebral palsy in Europe: A collaboration of cerebral palsy surveys and registers (PDF file, 150 KB) DMCN 2000, 42: 816-824.
Prevalence and characteristics of children with cerebral palsy in Europe(PDF file, 113 KB) DMCN 2002, 44: 633-640.
